QRPH October 5-6 Planning face-to-face meeting minutes
Welcome Roll call
- Landen Bain (CDISC)
- Scott Danos (Orion Health)
- Lori Forquet
- Amit Poppat (Epic)
- John Eichwald (CDC)
- Terese Finito (
- Yvonne Horton (HIMSS
- Anna Orlova (PHC..)
- Ana Esterlich (French Ministry of Health)
- Seth Foldy (State Health Officer and Administrator, Division of Public Health)
- Celina Roth (HIMSS)
- Mark
- Wendy S (CDC)
- Wendy B (CDC)
- Harry Solomon (GE)
- Vassil Peytchev (Epic)
- Bob Raye
- Gary Walker
- Mark Arratoon
Introduction of HIMSS and IHE Announcements regarding the domain Celina Announcement Lisa Spellman
- Presentation of the domains in general
- Having joint planning and technical QRPH committee meetings in order to help move the domain forward
- Proposition about having two planning cycles in QRPH
- Explanation of the IHE working methods
- Voting priviledges
- Determine logistics for the next meetings
- Wendy S mentioned the articulation between different domains and the different sponsors.
- Different organizations are sponsors, aside from HIMSS such as GIP-DMP associated with the French Ministry of Health
- Presentation of the QRPH and the general IHE processes by Ana Estelrich
- Presentation of the technical points by Vassil (content, transations, and the articulation between them).
Discussion of content profiles and infrastructure profile. (Ana, Vassil, Landen). Explanation of the administative process Detailed proposals between now and the joint planning/technical meeting. Put out information about how to fill out the detail proposal and what the process of selection is. Explanation of profile, white paper (implementable, but addreses no a very clear solution), framing document (guiding document) An implementable white paper is the precursor for a profile. Also the possibility to have it off cycle for a white paper (6 months off set). Each domain produces a technical framework. Each chapter in the "book" or the "technical framework" is a profile that has originated in a supplement. Volume 1 give a general overview of the process or of the content. Volume 2 describes the technical details. A supplement can be a new profile and/or an existing profile. The final text has to be written and publish, published for public comments for 30 days, then it published for trail implmentations. Sometimes the profiles are not implemented and it will be reviewed. They will be implmented at the Connectathon (two Connectathon, three vendors = final text). Sometimes the committee has to decide when the supplement becomes final text since the profiles are changes, the committee will approve.
CRD is getting close to becoming final text. Concern that the restrictions could be limiting for pulic health. The participation to the Connectathon is not mandatory. There needs to be more clarifications about what it means to get certified at the Connectathon. As a public health there is no market share (Wendy S), since the work is not for profit.
This is a topic that needs to be further discussed in public health.
Presentation of the excel sheet for priorization.
11:40 - Redaction Services Profile - Landen Bain. Explanation of the profile. Taking data from a private environment and exposing private data and potentially putting the research at risk. Similarity with public health. Redation services will be just like RFD, originally will address clinical research but it could be the basis for other needs such as public health. Linked to CRD.
LUNCH break QRPH-PCC joint meeting.
Newborn Screening Discharge Summary Cancer Registry Introduction Anna Orlova, Alan Zuckerman Establish the new born screening vs. New Screening Discharge Summary New Born Screening was separate in two tests: Blood Spot Testing EDHI profile, short-term follow-up for diagnosis with hearing problems. Terese Finito John Eichwald This is needed for CDC.