IHERO Electronic Patient Record

Interested Participants

If you're interested, please add your name and contact info.

• Colin Field, Medical Physicist
  • Cross Cancer Institute, Edmonton, AB, Canada
  • email: cfield@cancerboard.ab.ca
  • phone: 780-432-8625
• Mahmoud M. EL-GANTIRY,Radiation Oncologist,
  • National Cancer Institute – Cairo University, Kasr EL-Aini street, Kornish El-Nil, Fom El-Khalig, 11796, Cairo, Egypt.
  • Cellular Tel: +2-0101799845.
  • Fax: +202-23635083.
  • e-mail: melgantiry@yahoo.com
• Andrew Miller, Radiation Oncologist
  • Illawarra Cancer Care Centre, Wollongong, NSW 2500 Australia.
  • email: alexisandrew@gmail.com
  • phone: +61409654239

Links to Other Organizations working on this Task

• HIMMS
• ???

Required Data Elements

An overarching requirement is that the Knowledge Representation of data elements within the database structures defined match that of the oncological thought processes. In this way, clinical data be fragmented into a database storage schema and then re-constituted without loss of knowledge. This requirement calls for an EPR which has a strong diagnosis/time based approach to data that correctly indicates sequencing and the oncological reasons for events. This thinking is not present in some very widespread Oncology Information Systems (elaboration can be provided if required).

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1. Demographics
   1. need a way to use demographics to produce a unique ID to produce anonymous records if transferred

• Diagnosis
  • utilizing a structure which is mapped (via UMLS)
    • presently
      • using ICD .... 9 (USA) 10 (AU, NZ, UK?)
      • predominantly for malignant diagnosis alone
      • already includes structured morphology nomenclature (e.g. SNOMED
    • FUTURE
      • include all benign diagnoses (these are likely to be be transferrable from other specialties and GPs)
      • expanded morphology descriptors that include immunohistochemical patterns, genetic changes
• Stage
  • utilizing a structure which is mapped (via UMLS)
    • presently we use AJCC/UICC
    • in the future
      • utilizing more specific anatomical definitions
        • derived from CT/MRI/PET anatomy (?DICOM-SR subset)
        • described in an Anatomical Ontology
• Intent of Oncological Plan
• Employed Modalities
• Modality Details