Difference between revisions of "IHERO Electronic Patient Record"

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==Required Data Elements==
 
==Required Data Elements==
*
+
* Knowledge Representation of data elements has to match oncological thought
 +
** calls for a diagnosis/time based approach to data where sequencing and reasoning is preserved
 +
------
 +
* Demographics
 +
** need a way to use demographics to produce a unique ID to produce anonymous records if transferred
 +
* Diagnosis
 +
** utilizing a structure which is mapped (via [http://umlsinfo.nlm.nih.gov/ UMLS])
 +
*** presently
 +
**** using ICD .... 9 (USA) 10 (AU, NZ, UK?)
 +
**** predominantly for malignant diagnosis alone
 +
**** already includes structured morphology nomenclature (e.g. [http://www.ihtsdo.org/our-standards/snomed-ct/ SNOMED]
 +
*** FUTURE
 +
**** include all benign diagnoses (these are likely to be be transferrable from other specialties and GPs)
 +
**** expanded morphology descriptors that include immunohistochemical patterns, genetic changes
 +
* Stage
 +
** utilizing a structure which is mapped (via [http://umlsinfo.nlm.nih.gov/ UMLS])
 +
*** presently we use AJCC/UICC
 +
*** in the future
 +
**** utilizing more specific anatomical definitions
 +
***** derived from CT/MRI/PET anatomy (?DICOM-SR subset)
 +
***** described in an [http://sig.biostr.washington.edu/projects/fm/AboutFM.html Anatomical Ontology]
 +
* Intent of Oncological Plan
 +
* Employed Modalities
 +
* Modality Details

Revision as of 07:43, 18 January 2008

Interested Participants

If you're interested, please add your name and contact info.

  • Colin Field, Medical Physicist
    • Cross Cancer Institute, Edmonton, AB, Canada
    • email: cfield@cancerboard.ab.ca
    • phone: 780-432-8625
  • Mahmoud M. EL-GANTIRY,Radiation Oncologist,
    • National Cancer Institute – Cairo University, Kasr EL-Aini street, Kornish El-Nil, Fom El-Khalig, 11796, Cairo, Egypt.
    • Cellular Tel: +2-0101799845.
    • Fax: +202-23635083.
    • e-mail: melgantiry@yahoo.com
  • Andrew Miller, Radiation Oncologist
    • Illawarra Cancer Care Centre, Wollongong, NSW 2500 Australia.
    • email: alexisandrew@gmail.com
    • phone: +61409654239


Links to Other Organizations working on this Task

  • HIMMS
  • ???


Required Data Elements

  • Knowledge Representation of data elements has to match oncological thought
    • calls for a diagnosis/time based approach to data where sequencing and reasoning is preserved

  • Demographics
    • need a way to use demographics to produce a unique ID to produce anonymous records if transferred
  • Diagnosis
    • utilizing a structure which is mapped (via UMLS)
      • presently
        • using ICD .... 9 (USA) 10 (AU, NZ, UK?)
        • predominantly for malignant diagnosis alone
        • already includes structured morphology nomenclature (e.g. SNOMED
      • FUTURE
        • include all benign diagnoses (these are likely to be be transferrable from other specialties and GPs)
        • expanded morphology descriptors that include immunohistochemical patterns, genetic changes
  • Stage
    • utilizing a structure which is mapped (via UMLS)
      • presently we use AJCC/UICC
      • in the future
        • utilizing more specific anatomical definitions
  • Intent of Oncological Plan
  • Employed Modalities
  • Modality Details