PaLM Conf Minutes 2016-Dec-14
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Recording
The recording for this meeting can be downloaded here:
Attendees
Francois Macary | Phast |
Raj Dash, Co-Chair | CAP |
Riki Merrick, Co-Chair | APHL |
Carolyn Knapik | CAP, secretariat |
Mary Kennedy | CAP, secretariat |
Alessandro Sulis | CRS4 |
Dan Rutz | Epic |
David de Mena | SAS |
Dmytro Rud | Roche |
Filip Migom | MIPS |
Francesca Frexia | CRS4 |
JD Nolen | Cerner |
Jurgen De Decker | MIPS |
Laurent Lardin | bioMerieux |
Megumi Kondo | Sakura Finetek Japan |
Minutes
Agenda Review
1st hour
Announcement: Dmytro’s last meeting in PaLM – he is leaving Roche, staying in Healthcare, but not lab
F2F date for Japan: May 31 – June 2, 2017
Board report:
- Still need to find a few numbers for the connectathons – Megumi to look up registry numbers for Japan Riki to send this out to the google group
Call for new proposals:
- open until December 31st, 2016 – will review all proposals on our January committee call
SET document review:
- Merged use cases between inter and intra-organizational organization transfer
- Will a single diagram be enough, or do we need to add a second diagram to describe the different actors in the lab that touch the specimen for custody tracking – do we keep the pre-/post-processors?
- Pre-and post-processor is not mandatory
- How do we show different kinds of devices – analyzer or pre-/ post-processor, so combine these devices into a single actor “Laboratory Device”, and remove the redundant events, once this is done. The distinction between Analyzer, Pre/post-processor is just textual information, and can also be carried in the metadata of the event.
- Specimen discharge and specimen archive (= post-processor)
- Re-identification –person collecting tissue has access to the patient info – in the lab create a new number for bio-banking number – keeping a link to the original patient ID – but others do NOT have that access. Sometimes the de-identification occurs later or in some cases it does not happen, when the sample is helped indefinitely – to identify if biobank tissue has additional information for the clinical case (e.g. if there is cancer in the biobank sample, then the biobanking event is canceled) – but at some point de-identification could become total.
- Need to decouple de-identification and re-identification – biobanking identifier vs clinical identifier – when each of these steps happen is described by the research protocol, everyone is different
- Store both container ID and biobanking ID – container IDs across shipping orgs may not be unique, so we need to track both – important that vendors support MORE THAN ONE ID per biobanking specimen
- Not in diagram, but have in text
APSR 2.0:
- Shared the example XML file by Gunter
- Procedure Step section tracks all procedures performed on specimen
Riki drops off at 10:00 AM ET
Next call is on January 11, same time.